Trent's ANC is 2044 today! Big number.
He is officially off BMT isolation and he can move about the hospital.
He is also officially grafted, which means the transplant is working.
There will be some long term concerns regarding rejection of some type, but Trent is looking pretty good right now.
His new immune system seems to be fighting off the infection. No real pain or discomfort at this point.
Trent's appetite is still suppressed, but we'll take that considering.
This is a very good Thanksgiving. Lots to be thankful for. Thank God for his allowance of the transplant to take hold and function!
Thursday, November 28, 2013
Wednesday, November 27, 2013
Wednesday
Trent had another bid day today. ANC was 1134 today!
The transplant seems to really be taking hold.
If Trent has another good ANC day, the doctors will remove him from BMT isolation, which will allow Trent to walk around the 5th floor and get some exercise.
Trent is looking better and his speak seems to be back to normal.
Please pray that there will be no rejections to all this good work in place.
The transplant seems to really be taking hold.
If Trent has another good ANC day, the doctors will remove him from BMT isolation, which will allow Trent to walk around the 5th floor and get some exercise.
Trent is looking better and his speak seems to be back to normal.
Please pray that there will be no rejections to all this good work in place.
Tuesday, November 26, 2013
Tuesday
Trent's ANC was 510 today! Wow!
The ANC number is a calculated number based on the white cell count.
Trent's ANC was 175 yesterday, but we did not get that news.
If he gets good numbers tomorrow and Thursday, the doctors will call the transplant grafted, which means the bone marrow transplant was a success and the new stem cells are doing their job creating cells.
Trent is still working through other issues, but today's news was big!
Thanks for all your prayers! Keep them coming!
The ANC number is a calculated number based on the white cell count.
Trent's ANC was 175 yesterday, but we did not get that news.
If he gets good numbers tomorrow and Thursday, the doctors will call the transplant grafted, which means the bone marrow transplant was a success and the new stem cells are doing their job creating cells.
Trent is still working through other issues, but today's news was big!
Thanks for all your prayers! Keep them coming!
Monday, November 25, 2013
Monday
Trent has been getting better.
The swelling in the tongue seems to have gone down. His speech is better.
I don't think he is using the pain medication as much, but he still needs it to get through a meal due to the throat pain.
One of the nurses said on Saturday that she though his white count may be measurable, but another nurse said that it's still too early to tell. It still sounded good to hear someone say that the transplant was working, regardless if it was real, or not.
The swelling in the tongue seems to have gone down. His speech is better.
I don't think he is using the pain medication as much, but he still needs it to get through a meal due to the throat pain.
One of the nurses said on Saturday that she though his white count may be measurable, but another nurse said that it's still too early to tell. It still sounded good to hear someone say that the transplant was working, regardless if it was real, or not.
Thursday, November 21, 2013
Thursday
Trent still has mucositis and probably will for a couple weeks until the white cell count goes back up.
He's on antibiotics, but the immune system needs to be stronger to get rid of this infection.
His tongue is swollen due the infection, so his speech is difficult.
He's got control of the pain medication through a push button. He does not use it until he needs it.
All in all, he's going good. Getting lots of sleep. He's getting three milk shakes a day down even with the throat pain.
Please keep praying for his speedy recovery and the transplant to take hold.
He's on antibiotics, but the immune system needs to be stronger to get rid of this infection.
His tongue is swollen due the infection, so his speech is difficult.
He's got control of the pain medication through a push button. He does not use it until he needs it.
All in all, he's going good. Getting lots of sleep. He's getting three milk shakes a day down even with the throat pain.
Please keep praying for his speedy recovery and the transplant to take hold.
Sunday, November 17, 2013
Sunday
Trent is dealing with throat issues caused by the chemo and radiation. It's call mucositis.
Its causing pain and Trent is on a drip pain medication so he can eat and relax.
He's able to get shakes from the "shakes menu".
He's also on antibiotics for the throat as well.
Trent's working through each issue, step by step, but it's wearing me out!
It's still been a good week, even with the issues. That BMT was very special!
Its causing pain and Trent is on a drip pain medication so he can eat and relax.
He's able to get shakes from the "shakes menu".
He's also on antibiotics for the throat as well.
Trent's working through each issue, step by step, but it's wearing me out!
It's still been a good week, even with the issues. That BMT was very special!
Thursday, November 14, 2013
Thursday
Trent has been doing well since the BMT.
His counts actually went down today, which the nurse says is still delayed effects of the chemo from last week. They actually like to see this drop knowing that the chemo did it's job and cleared the way for the BMT.
Trent's appetite has been low and he needs to eat more. This really helps the BMT speed up the process.
We talked to a young man who got out of CHOC in 22 days by eating even when he was not hungry and had sores in his mouth. Trent is scheduled for around 6 weeks.
His counts actually went down today, which the nurse says is still delayed effects of the chemo from last week. They actually like to see this drop knowing that the chemo did it's job and cleared the way for the BMT.
Trent's appetite has been low and he needs to eat more. This really helps the BMT speed up the process.
We talked to a young man who got out of CHOC in 22 days by eating even when he was not hungry and had sores in his mouth. Trent is scheduled for around 6 weeks.
Wednesday, November 13, 2013
Wednesday
Trent's BMT went very well last night.
They started early and received a "large" bag/gift/donation from Trent's donor. May God bless the donor for his gift!
They started around 9:30pm and got done after 11pm. Big bag!
The doctors and nurses said that the donor did not have his "harvest" done through the hip. This harvest was done through a IV, into a centrifuge where the stem cells were collected, then the remaining cells were returned to the donor in another IV. This is common when collecting from a adult. The collection takes 4 to 5 hours.
Trent was very sleepy during the BMT. He was given Benadryl as a pre-medicine for the BMT and that makes him tired. He also had the chills. The donation was still cool from being in a cooler during transportation.
Trent's main nurse studied under Dr. Robert Good, who performed the first bone marrow transplant in 1968. She was very educational during the whole evening.
Thanks for all the prayers! This has been quite a blessing and there is many weeks of recovery left, but it nice to have the chemo and radiation behind us.
They started early and received a "large" bag/gift/donation from Trent's donor. May God bless the donor for his gift!
They started around 9:30pm and got done after 11pm. Big bag!
The doctors and nurses said that the donor did not have his "harvest" done through the hip. This harvest was done through a IV, into a centrifuge where the stem cells were collected, then the remaining cells were returned to the donor in another IV. This is common when collecting from a adult. The collection takes 4 to 5 hours.
Trent was very sleepy during the BMT. He was given Benadryl as a pre-medicine for the BMT and that makes him tired. He also had the chills. The donation was still cool from being in a cooler during transportation.
Trent's main nurse studied under Dr. Robert Good, who performed the first bone marrow transplant in 1968. She was very educational during the whole evening.
Thanks for all the prayers! This has been quite a blessing and there is many weeks of recovery left, but it nice to have the chemo and radiation behind us.
Tuesday, November 12, 2013
Tuesday = BMT Day!
Well, day is the day for the bone marrow transplant.
We are very excited and very optimistic. God is with us.
Trent has been dealing with some of the effects of radiation, but looked in very good spirits yesterday.
The transplant is scheduled for 10pm tonight, but the doctor said yesterday that it could be anytime after 10pm. Those guys at CHOC are never in any big hurry, and that's OK. They have many kids with some really big needs. When you pray for Trent today, please add a little prayer for all the kids at CHOC and the donor too! After 15 months of dealing with cancer, we have seen so many kids/familys that have lots of challenges. We have also seen some people with some really big hearts, the doctors, nurses, our donor and Trent's teacher's, Liz and Brent, have all gone out of their way to care for Trent particular needs. Our family, friends and church family continues to provide meals, prayers and support so that we are never alone during this challenge. Our God has always been with us every step of the way and we are encouraged by His constant presence.
The BMT recovery will take several weeks so please pray for Trent's body to take in his transplant and recover without rejection.
We are very excited and very optimistic. God is with us.
Trent has been dealing with some of the effects of radiation, but looked in very good spirits yesterday.
The transplant is scheduled for 10pm tonight, but the doctor said yesterday that it could be anytime after 10pm. Those guys at CHOC are never in any big hurry, and that's OK. They have many kids with some really big needs. When you pray for Trent today, please add a little prayer for all the kids at CHOC and the donor too! After 15 months of dealing with cancer, we have seen so many kids/familys that have lots of challenges. We have also seen some people with some really big hearts, the doctors, nurses, our donor and Trent's teacher's, Liz and Brent, have all gone out of their way to care for Trent particular needs. Our family, friends and church family continues to provide meals, prayers and support so that we are never alone during this challenge. Our God has always been with us every step of the way and we are encouraged by His constant presence.
The BMT recovery will take several weeks so please pray for Trent's body to take in his transplant and recover without rejection.
Monday, November 11, 2013
Monday
Trent is done with chemo!
Trent is done with radiation!
The bone marrow transplant is tomorrow.
The transplant is scheduled for 10pm.
Please pray that donor has a peaceful next couple of days. I pray that the pain will be minimal for him.
He is a male and 41 years old. That's all we know.
We will not know him for a least one year and only if both parties consent, will we get to meet him.
Please pray that Trent's body will accept this gift and allow it to operate.
Trent has always been and will always be in God's hands!
Trent is done with radiation!
The bone marrow transplant is tomorrow.
The transplant is scheduled for 10pm.
Please pray that donor has a peaceful next couple of days. I pray that the pain will be minimal for him.
He is a male and 41 years old. That's all we know.
We will not know him for a least one year and only if both parties consent, will we get to meet him.
Please pray that Trent's body will accept this gift and allow it to operate.
Trent has always been and will always be in God's hands!
Sunday, November 10, 2013
Sunday
Trent is done with radiation.
He started chemo yesterday and the last dose will be today.
So after today, I believe he is completely done with chemo. Forever! May God bless what has been done!
Trent got a little sick last night and maybe once or twice this week, but all in all, he's done well by staying active by walking around CHOC and keeping a good attitude.
Tomorrow Trent will start a medication that will help the effects of transplant.
Today is day 2.
He started chemo yesterday and the last dose will be today.
So after today, I believe he is completely done with chemo. Forever! May God bless what has been done!
Trent got a little sick last night and maybe once or twice this week, but all in all, he's done well by staying active by walking around CHOC and keeping a good attitude.
Tomorrow Trent will start a medication that will help the effects of transplant.
Today is day 2.
Thursday, November 7, 2013
Thursday
Trent had two sessions of full body radiation yesterday, today and tomorrow.
The treatments give him a headache, but the nurses gave him medication for that.
He deals with it by taking naps and staying quiet. He's doing OK.
He'll finish up the radiation on Friday, then two days of chemo on Sat and Sun.
We are at day 5.
The treatments give him a headache, but the nurses gave him medication for that.
He deals with it by taking naps and staying quiet. He's doing OK.
He'll finish up the radiation on Friday, then two days of chemo on Sat and Sun.
We are at day 5.
Tuesday, November 5, 2013
Tuesday
Trent has been doing well.
I don't think he is getting used to the new chemo as much as having it delivered over 8 hours versus 4 hours has helped him tolerate it better.
Trent and his teacher are all set up to Skype the classes that Trent needs to keep him going in his senior year.
Trent's teacher is just a great person who has done many work-arounds to keep Trent's classes schedule going.
She is willing to even work through the holidays to keep Trent on track.
We are now at day 7.
I don't think he is getting used to the new chemo as much as having it delivered over 8 hours versus 4 hours has helped him tolerate it better.
Trent and his teacher are all set up to Skype the classes that Trent needs to keep him going in his senior year.
Trent's teacher is just a great person who has done many work-arounds to keep Trent's classes schedule going.
She is willing to even work through the holidays to keep Trent on track.
We are now at day 7.
Sunday, November 3, 2013
Sunday
Trent had a challenging day on Friday.
He got a new set of tubes installed and they started a type of chemo.
It was delivered too fast and Trent got the shakes/chills and got sick. They were also trying to do a ultrasound at the same time. And he was hook up to heart rate and blood pressure monitors.
One of the doctors came in and stopped the ultrasound, stopped the chemo and waited until the chills stopped.
They restarted the chemo at a slower pace and Trent was able to tolerate that rate.
Saturday he seemed more stable and was sleeping most of the day.
Today is day 9, I think, so he still has lots of chemo and body radiations prior to transplant.
Please pray that Trent stays comfortable during these next several days.
He got a new set of tubes installed and they started a type of chemo.
It was delivered too fast and Trent got the shakes/chills and got sick. They were also trying to do a ultrasound at the same time. And he was hook up to heart rate and blood pressure monitors.
One of the doctors came in and stopped the ultrasound, stopped the chemo and waited until the chills stopped.
They restarted the chemo at a slower pace and Trent was able to tolerate that rate.
Saturday he seemed more stable and was sleeping most of the day.
Today is day 9, I think, so he still has lots of chemo and body radiations prior to transplant.
Please pray that Trent stays comfortable during these next several days.
Friday, November 1, 2013
Friday
Trent checked into CHOC this morning.
The countdown has begun. This is day 11.
He'll get another IV tube implanted and a stomach ultrasound is scheduled for this afternoon.
Trent got thru radiation this week with no ill effects.
He was in good spirits last night.
The countdown has begun. This is day 11.
He'll get another IV tube implanted and a stomach ultrasound is scheduled for this afternoon.
Trent got thru radiation this week with no ill effects.
He was in good spirits last night.
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