Friday

Trent has been doing great since he's been home.
His energy has been good.
He had a visit from a nutrionalist named Louie Smith. What a eye opener!
We've done some engine building for the Willys.
It's been a good week.

Trent got released

Trent got released from CHOC this afternoon. We are back home.
We go back next Tuesday for next treatment, but it will be outpatient in the CHOC hospital.

This weeks treatment

Yesterdays treatment went real well. Trent came out of the procedure smiling and chatn with the nurse. He spent most of the afternoon napping. He had more chemo later in the afternoon by IV.
If I read the roadmap right, there is no chemo today, so he's done for the week.
If things go well this week, the doctors might release Trent later on this week and he would do the rest of this sessions chemo through the outpatient clinic.
Please keep your prayers coming in for Trent. We are waiting for donor test results and I know Trent would like to head home.

Tuesday Week2

Trent had a good weekend. Thanks for the visits!
Trent has school from 8 to 10am this morning and Thursday morning. Chemo is scheduled for around noon on Tuesdays. Tuesdays and Wednesdays are probably good days to not visit. He is usually very tired and sleeps during the day.
We should get results back from the donor tests this week. If Grant, Kristie or I are a match, we will be good for the bone marrow transplant. If none of us are a match, we will start the process of finding a donor match. I'll post some good info from Trent's donor coordinator on where to get test kits.

Sunday's visits

Trent got lots of visitors yesterday after church.
Lots of smiles and laughs. It was food for the soul.

Sunday

Today I'll be video recording Pastor Bob this morning so that Trent can view his sermon.
Trent, Grant, Kristie and I attend the Taft Ave Community Church.
Along with the youth group at TACC, Trent also attends youth group meetings at two other local churches.
I cannot say enough about being part of a local church. During the challenges that have faced Trent and his family, our church family have stood by us and supported us like only a family can.
Having God surround this family, has given us peace that Trent is under the ultimate care and love.
Trent has more energy the last couple a days being off chemo. We walked around the hospital yesterday and talked about this upcoming summer and his senior year class schedule.

First week

Trent got through his first week of the new treatment.
His spirits were high yesterday and looks like he's reacting well with a diet of pizza and peanuts. Sounds like my kind of program.
His next dose of chemo will be Tuesday, so he'll have a nice couple of days off treatment.

Donor Testing

We are getting lots of questions regarding bone marrow transplanting and testing for donors.
The coordinator for Trent's transplant has suggested that people might want to wait until after Kristie, Grant and I get tested. If we are not a match, then CHOC will be looking outside the Koontz trio.
We should know soon.
If anyone wants to be a "global" donor, then there's no need to wait.
You have a choice to be private donor, which only Trent's team will receive the data, or you could be on the national/global database and anyone who needs a transplant would be able to receive your gift.

Starting Transplant Process

Trent got through this weeks chemo. Even though we encourage him to eat, he usually does not like to eat during chemo, which might be a good thing? Maybe he knows something we don't? Probably.
Kristie, Grant and I are getting tested for the bone marrow transplant. The coordinator said they are looking at DNA, so it's swab out of the mouth. Sounds easy?
I don't know much about the process, but the transplant needs to happen at the end of the 15 week chemo treatment. I have some close friends who have been through this process and it sounds like a life saver.
Trent's Home Hospital teachers are going to come to CHOC to finish up his junior year studies. His teachers have been a major help in keeping life going while Trent battles the good fight. Thank God for the heart in those people. Trent has school from 8am to 10am today, so it's probably not a good time to visit. The rest of today and the remainder of this week are OK for visiting. Hours are 8am to 8pm.

Wednesday's Treatment

Trent's got one dose of chemo today which should be his last for this week.
Next dose is scheduled for next Tue.
He needs to stay in the hospital so the doctors can review his reactions. So far, so good.
We'll check with Trent today and see when visitors can come.

First Day of Treatment

Trent got 3 doses of chemo in the spinal fluid and 2 doses through IV yesterday.
He was a little tired.
The new tower at CHOC is nice and Trent has a single bed room.
Each room has a bigger TV with Xbox and BluRay player.

Trent's New Treatment

Trent's test from last week shows signs of cancer in the spinal fluid.
He checked into CHOC hospital yesterday and starts a more aggressive treatment.
He will be at CHOC for a couple weeks.
He has three 5 week treatments. The start of each treatment is a couple weeks in CHOC.
After the three 5 week treatments, Trent will get a bone marrow transplant.
At that point, he will be done with treatments and clean from cancer.